Celebrating Acceptance

When we think of Valentine’s Day, we think of love. And this year, for me, there was that. But it was also a celebration of one of the principles that accompany love – acceptance. Allow me to elaborate:

Last year, my daughter began kindergarten at a new school. We found ourselves in a community of people where I was the only person, let alone parent, in a wheelchair. She and I both dealt with her peers’ questions. Some kids were curious in an innocent, friendly, compassionate manner while others would abruptly ask, “What’s wrong with you?” “Why doesn’t your mom walk?” “What’s wrong with her legs?” While my daughter and I are used to being stared at, pointed at and either answering or dodging questions while in public, this was her first experience dealing with all of this amid making new friends and find her place at her new school.

By the time Valentine’s Day rolled around last year, us parents were sending out sign-ups and emails for the party that was to take place in her classroom. I helped her pick out treats and cards for her friends. And then, one night during dinner, I mentioned being excited about coming to her party the following week. She glanced shyly at me and asked, “Would it be okay with you if you didn’t come?” I asked her why? She said it would embarrass her; that I was the only mom in a wheelchair and she just wanted to have fun. I was crestfallen yet I couldn’t show her how bad I hurt. I told her I understood and only wanted her to have a good time. I promised her I wouldn’t come. She thanked me. It was the first time she’d ever told me I embarrassed her or told me she didn’t want me to join in on something she was doing. While it hurt my heart so bad, I knew it wasn’t about me. I couldn’t let on how I felt because it would make her feel guilty. The day of the party, I sat out in the carpool line waiting for her festivities to be over so I could hear all about it. A fellow mother sent me some pictures since I ‘couldn’t be there.’ That was my undoing. I started sobbing. I wanted to be in there watching her smile and have fun. I cried harder as parents and kids began coming out of the school with bags full of treats and cards, smiling and talking a mile-a-minute. But by the time my little girl got in the car, I’d dried my tears and listened as she told me all the fun things they’d done and what she’d gotten from her friends.

So, fast forward to this past Valentine’s Day. The same planning began taking place leading up to the holiday. The parents signed up to volunteer time and items and I took my daughter shopping for her classmates. I assumed I wasn’t coming and so made no plans to do so. The night before Valentine’s Day, she asked me if I was coming. I asked her if she wanted me to and she responded, “Of course! I love you! You have to be there!” I was elated! I realized she’d come to a point where she no longer cared about how I functioned as a mom; she cared simply that I was her mom and she wants me to be present. Her friends and classmates have also become less shy and inquisitive as the year has progressed. I wonder if they’re realizing I’m just like their moms, except that I parent from 6 wheels instead of 2 legs. I feel accepted there, even by other parents who didn’t know quite how to interact with me at first.

The party this year was so much fun! And to be a part of it; to be wanted there, needed there felt divine! The teacher had taken the students out of the classroom so that me and a few other moms could set up the party. When the students began filing into their newly decorated room, my daughter spotted me, yelled “Mommy!” and ran into my arms. Our embrace was caught on camera by another parent and it embodies the love my daughter and I feel for each other. And, this year, along with that love has come major acceptance of our situation, of each other. Yet isn’t that what love is all about?

Valentine's pic

photo credit: Steve Slone

Advertisements

Blessing Blooms From ‘Bathroom Blunder’

            I recently wrote about an incident which occurred at my daughter’s school titled, “School’s Inaccessibility Causes Bathroom Blunder.” In the two years my daughter has attended the school, it was the first time I found myself in a physically inaccessible situation. I was quite dismayed, to say the least. After the experience, I planned to contact the Headmaster and ask for a meeting. I intended to let him know how I’d felt and that I expected the necessary accommodations to be made to the bathroom by the end of the school year.

            So, it was to my surprise (and delight) that I received an email from the Headmaster a week later. He acknowledged that I must have felt frustrated and embarrassed, apologized profusely and explained to me that the Director of Facilities had bought equipment and installed it in order to make the bathroom ADA compliant and fully accessible to people who use wheelchairs. He invited me to come look at the bathroom and let him know if it did indeed meet requirements necessary for someone to transfer over to the commode.

            I stopped by the school earlier this week and was pleased that the stall divider between the accessible stall and the one beside it had been taken out and replaced with a thicker, sturdier divider. A horizontal transfer bar ran from behind the toilet to the side. (**Please see photos at bottom of article**) I went to the main office and the Headmaster came out to apologize again to me, this time in person. He commented that any time I see something that isn’t accessible or needs improvement, to please contact him so it can be dealt with immediately. I told him the only change in the bathroom I’d like to see at this point is a vertical bar above the horizontal one. For me, my upper body is regressing and I’m also a heavier person, so I grab onto both bars to transfer – it’s simply safer for me.

            It’s important to me that people know how the school dealt with this situation. I didn’t have to say anything to them. The school took the initiative. They responded quickly and reached out to me, not only apologizing for my experience but inviting me to make sure they’d fixed the problem. This solidified my faith in this school. In a world where so often, the disability community must fight for rights, accommodations, etc., it’s nice and reassuring that there’s people and places that will act quickly and with compassion simply because it’s the right thing to do.  

 

 

 

 

 

A Motherhood Milestone You May Not Relate To

Image

            Two nights ago, I reached a milestone. I doubt it’s one many other parents reach. I doubt it’s a milestone other people would even consider. But for me, it was major! My daughter is 7-years-old and has had many sleepovers at other people’s houses. I can’t even begin to think of how many parents have hosted her in their homes. Yet, not once has she had a friend stay over at our house. It’s not that invites haven’t been given; nobody’s taken us up on them. Most often, instead of the friend staying here, the parent(s) will offer to have my daughter over.

            But the other night, she had her first friend stay at our house. I was so elated and grateful when my friend asked me if I would mind her young son staying at our house. To be honest, I was also shocked that someone was finally trusting me with their child overnight. Her son and my daughter attend the same school; I’d be picking them both up, have her son here overnight and then take them both to school in the morning. I thanked her for her trust profusely and told her it was the first time someone was letting their child stay at our house. She commented that maybe it was due to people not wanting to ‘burden me’ because they know I have two chronic illnesses on top of my physical disability. Yet she also made the remark that people simply aren’t aware of all that I’m capable of; they make a judgement call based on their assumptions and don’t give me the benefit of the doubt. She said she knew I could do it and wasn’t worried in the least.

            I’d often wondered if the reason we hadn’t hosted another child overnight was due to my illnesses or disability. It had made me feel a little inadequate, less than and different to realize people were quick to let my daughter stay with them but never to let their child stay with us. It’s a feeling and a situation I doubt most parents experience unless they’re like me. People frequently comment that they ‘don’t know how I do it,’ ‘will help me whenever I need it’ and ‘are inspired by me’ for being a disabled single parent. But what they don’t understand is that I’m not an inspiration; I’m just a parent like them; that I don’t know any other way to do and live my life except this one so to me, it’s not harder than anyone else’s life. Yes, I need help from time to time, but everyone does. Every parent (especially single parents!) needs a break now and then. It has nothing to do with my disability. What other parents don’t realize is that I can’t imagine how they do what they do! I get worn out just watching some of my friends run around on their healthier legs or working full-time then coming home to take care of their house and family, most often with multiple children. It’s not about the life we live or how we’re living it; it’s about our perspective, which we only have through the lens of how our own lives work.

            So, back to the other night: I picked the kids up from school and we chattered away excitedly in the van on the way home. They both had homework so that came first. Then I fed them dinner, let them play for a while and got them both ready for bed – teeth brushed and all! I read two books, sang them a song and left the bedroom. The next morning, I laid their uniforms out, made them breakfast, packed them both lunches and drove them to school… on time. Doesn’t that sound like what would happen in a nondisabled person’s home? Doesn’t that seem so bland, so common, so uninspiring?!?

            My parental milestone flew by without flaws nor fanfare but to me, it was dazzling! It made me feel like I belonged to the parents’ club. I felt not only trusted but respected. Because my friend and her husband didn’t hesitate in allowing their son to stay with me; they didn’t question me as to whether it would ‘burden’ me or be ‘too much.’ They treated me like they do anyone else; they simply saw me as another parent. And sadly, if more of my friends and parents of my daughter’s friends would see me this way, treat me this way, I never would’ve had a milestone to begin with. It wouldn’t have taken 7 years for someone to trust me with their child; to know that I’m just as capable as any other parent; to see me as they see themselves.

Kai blog pic

Playtime for the kiddos!